2007-2008
HFMD Board Member Profiles

Beth Andersen has been involved in the bleeding disorders community because her son was diagnosed with severe hemophila  Type A ten years ago.  Her daughter is a carrier of hemophilia and she is also a symptomatic carrier.  Over the past six years, Beth has been involved with HFMD Family Retreats; fund raising for the Hearts of Hope Gala’s; a member of the  Parent Planning Committee; and a volunteer with the Women’s Outreach Committee.  Beth is grateful to have the opportunity to give back to the HFMD chapters, which has been vital for her and her family to learn about hemophilia and for her son to connect with other boys who also have hemophilia.  She is interested in providing education to the rural communities in all areas of bleeding disorders and to support the programs that HFMD currently provides.  Beth resides with her husband, Jon, in Walker, MN with their two children; Jennifer 14 and Jared 10.  Beth works with Jon who owns and operates Andersen Log Homes Co., building handcrafted log homes and she is an LPN working in Bemidji.  Both Beth and Jon are active in their community through various committees and agencies.

Jim Brown has been involved with the bleeding disorder community all his life since his older brother and Jim were diagnosed with sever Factor IX and his parents helped found the first hemophilia chapter in Nebraska.  Chapters have always been a source of support, encouragement and information and Jim feels it is important to give something back to the groups and help other families as well.  Over the years, he has been a presenter of numerous programs throughout the bleeding disorders community.  Jim works full time for a home care company that covers the mid-west area.  He is past president of the Nebraska Chapter of NHF, is a Board member for the Hemophilia of Iowa, and has served on the Governor’s HIV/AIDS Advisory task force in Nebraska.  Jim and his wife Barb live in Lincoln, Nebraska and have three grown daughters and four grandchildren.   

Denise Cadwell is the Mother of Nickolas Gamache who is 15 years old.  Nickolas was diagnosed with von Willebrand type IIA at 10 months.  Since that time, she has been an active volunteer for HFMD on several outreach programs.  Denise is a Health Care Improvement Coordinator with BlueCross BlueShield of Minnesota and is actively involved on a daily basis with programs designed to “Bring a Healthy Difference in People’s Lives.”  She has been employed with BCBSMN for the past 9 years and looks forward to utilizing her Medical Insurance knowledge and expertise on the HFMD Board.  In addition, Denise is also a mother to JoDee Gamache (19) and four fun step children.  She and her husband, Charles, are proud Grandparents to Julien and Paige Marie as well.  Denise takes great pride in co-parenting a large family and believes that through volunteerism, parents demonstrate to their children that they are invested in the certainty of their child’s’ future.  In turn, their child will learn to teach, share, and become active volunteers themselves in order to secure and solidify their own futures! 

Judith Campbell, MD is a family practice physician, who also does emergency medicine, medical acupuncture, and mission work.  Residing in Thief River Falls, Judith and her husband, Gordon, have three sons Hugh, Mark and Sam. Two of their children have been diagnosed with severe Factor VIII deficiency.  In 1997, the Campbell’s moved to Minnesota from Winnipeg where they were very active in the Canadian Hemophilia Society-Manitoba Chapter.  Judith has extensive professional experience working with people with HIV/AIDS, hepatitis, and chronic pain.  She serves on the local board of Little Brothers, Little Sisters and also volunteers with Hospice.  Judith is interested in serving on the board to give back some of the support and encouragement she has received over the years.   

Sharold Friedrich became involved in the bleeding disorders community because of her son Samuel who has hemophilia A and von Willebrand disease.  Sharold is a symptomatic carrier of hemophilia and also has von Willebrand disease.  She has been involved with Women with Bleeding Disorders as a volunteer at the Fargo Woman’s Showcase.  She is especially concerned about people with bleeding disorders who live in rural or out-state areas, and would like to contribute in that regard.  Sharold resides in Fergus Falls with her husband, David, and their three children; Brandon 20, Samuel 15 and Alysse 12. 

Bill Kallberg was born and raised in Minnesota and is now a semi-retired pipeline safety consultant.  He and his wife, Elizabeth, reside in the Prior Lake area.  They became involved with Hemophilia in 1968 when their youngest of five children was born with severe hemophilia A.  Seeking support in the community, they were directed to what was then the Minnesota Chapter of the National Hemophilia Foundation.  They were involved with the start-up of the Fairview Hemophilia Treatment Center, and have been heavily involved with the HFMD Hearts of Hope Gala since 2002.  Bill joined the HFMD Board in 2005 supporting fund-raising and advocacy at local and national hemophilia community events.  His hope is for better treatment for this generation and a cure for the next generation. 

Jim Langworthy, M.S., M.Div., is a licensed Independent Clinical Social Worker who has been the hemophilia and HIV social worker at Mayo Clinic for 20 years. He has served on the Board of Directors for the Hemophilia Foundation of Minnesota and the Dakotas, the Minnesota AIDS Project as well as the Professional AIDS Network (SE Minnesota) for which he was a founding member and chair.  Mr. Langworthy has served on numerous local, regional and statewide committees related to treatment access and psychosocial needs of people living with hemophilia and/or HIV.  He is currently Chair of the Social Work Working Group of NHF and a member of the Psychosocial Committee for the World Federation of Hemophilia.  He as received the Train-the-Trainer certificate for cross-cultural competence, team building and parenting children with special health needs.  In addition, he has also given multiple local, regional, national and international presentations on psychosocial issues in hemophilia and/or HIV care, sexual orientation, cross cultural communication and social work advocacy.  In collaboration with community groups and other health care providers, he has written successful grants and implemented a wide range of programs related to the medical and psychosocial care of people living with hemophilia and/or HIV.

Steph Miller recently became involved with the Hemophilia Foundation of Minnesota/Dakotas after attending the annual meeting.  Step lives in Savage, MN with her husband Jim and their one year old son Nathan who has hemophilia B.  As a new board member, Steph is eager to continue to learn about HFMD and how she can offer support to families who are coping with a newly diagnosed bleeding disorder.  Steph is employed by CIGNA Behavioral Health as the Manager of Customer Reporting.  

Elizabeth Meyers is interested in serving on the Board for two reasons; first is representing South Dakota and having an influence in the community, secondly is educating families and medical staff about von Willebrand disease and the experiences that they have gone through as a family.  Liz and her husband Pat have six children ranging in age from 24 to 9 and they have one granddaughter.  Liz and her son Andrew have mild type I von Willebrands and her daughter Shaina has severe von Willebrands disease type III.  Liz is an Executive Assistant at the Brown County Chapter of the American Red Cross and also does volunteer work there.  She is interested in keeping up with changes and new information that is available in the bleeding community and feels it is necessary to communicate this information to others. 

Brenda Neubauer has served on the Board Member for a number of years, and been active on a local and National level with advocacy and lobbying.  Brenda resides in Bismarck with her husband, Dan, and their two boys.  Brenda and Dan are partners in a general practice law firm, and are both active as volunteer coaches for their children and other youth in various sporting activities.  Brenda with nine hemophiliacs in her family is committed to assuring that quality services and care remains available to those affected with bleeding disorders, especially in rural areas.  Brenda is also passionate about insurance caps and coverage issues, and the devastating affects they have on the patient and also the patient’s family.  She is working hard through lobbying efforts to bring attention to this issue.

Joni Osip is the Program Manager and has been at the Hemophilia & Thrombosis Center since 1989.  She has a mater’s degree in child and family nursing from the University of Minnesota and teaches family nursing on a part time basis at Metropolitan State University.  Joni has been instrumental in planning Camp and the bleeding disorders Minnesota Family Retreat and has been active in the hemophilia nursing community on a national level.  She is married and lives in Minneapolis with her husband John.  Her daughter, Jeanie, has left the nest and attends the University of Wisconsin, Stout.

Aaron Reeves has been active in the Hemophilia Foundation of Minnesota/Dakotas and NHF since his son was diagnosed with severe hemophilia ten years ago.  Over the years, Aaron has attended many HFMD annual meetings, parent retreats and related events.  He also makes a strong effort to attend the NHF annual meetings.  Aaron has extensive experience in board governance, budgeting and legislative affairs.  He is interested in working with others in the community to make the HFMD a strong organization which will meet the needs of members now and in the future.  Aaron has been married to his wife Paige for twelve years and has two children, Isaiah 11 and Moriah 9. 

John Schulte is interested in helping newly diagnosed families with coping skills; helping the under-represented families in the hemophilia community; and focus on life-long fitness for healthy joints and weight maintenance.  John, and his wife Barby, live in Woodbury with their two daughters, Anika and Alyssa, and their son Cole.  Their one daughter is a hemophilia carrier and their son has Hemophilia A.  John is involved in several ministries at Woodbury Lutheran Church and he coaches.

Bob Stone is a teacher and educational administrator who is the retired State Director of the North Dakota Division of Independent Study.  He, along with eight men in his extended family, has hemophilia B.  Bob and his wife JoAnn, live in Fargo, North Dakota; they have a married son and two grandchildren.  Bob has served on the HFMD Board for over five years.  During that time he has chaired the Scholarship Committee, served as Vice-President, and has helped organize both the Medora and Sioux Falls Family Retreats.  Bob’s primary interest is in extending HFMD services to individuals with bleeding disorders throughout the tri-state area.  In addition to the HFMD Board, Bob regularly serves the homeless at Churches United for the Homeless, works with wheelchair patients on Tuesdays with the Fargo Park Board’s “Happy Rollers” group, mentors a Sudanese Refugee Family through his church, and serves as President of the Sudanese Task Force for the Northern Plains Conference of the United Church of Christ. 

Dan Tinklenberg was born in California and moved to Willmar, MN at a very young age.  Growing up in a small town with no other hemophiliacs, the education and activities provided by the hemophilia community were extremely valuable.  Realizing that geographic isolation is commonplace for people with hemophilia, Dan has a strong desire to ensure that the same opportunities are available for current and future generations of the bleeding disorders community.  A board member since April 2004, Dan has been actively involved in the HFMD’s new family fitness program.  Activities such as swimming, hiking and biking have allowed him to stay fit without causing joint problems which is an important aspect to managing hemophilia.  A resident of St. Louis Park, Dan works for SRF Consulting Group, Inc. as a Graphic Information Systems Analyst.