Resources

Click HERE to see the National Hemophilia Foundation’s Health Care toolkit to help you decide your personal and family health care insurance coverage.

Hemophilia – is a generally inherited bleeding disorder caused by low levels, or absence of, a blood protein that is essential for clotting; hemophilia A is caused by a lack of the blood clotting protein factor VIII; hemophilia B is caused by a deficiency of factor IX.  The disorder delays coagulation, making bleeding difficult to control.

Below are some helpful resources:

Hemophilia Treatment Centers

Mayo Comprehensive Hemophilia Center

North Dakota Hemostasis/Thrombosis Treatment Center – Sanford

Sanford Children’s South Dakota Center for Blood Disorders

Children’s Hospital and Clinics of Minnesota

Fairview University Hemophilia and Thrombosis Center

More information can be found here.

Education & Information

National Hemophilia Foundation

The Hemophilia Federation of America

World Federation of Hemophilia

Legislative Action Center