Rare Disease Day

When:
February 26, 2021 @ 11:30 am – 2:00 pm
2021-02-26T11:30:00-06:00
2021-02-26T14:00:00-06:00

Telehealth in Rare Disease Clinical Practice and Research: The Silver Lining Now and Beyond COVID-19
Friday, February 26 2021
Virtual
Please Register HERE
The theme of this year’s program will be telehealth. Possible panel topics include, but are not limited to: provider and patient experiences, policy and legal implications, and how clinical trials will need to adapt.

Event Agenda

11:30 a.m. – 12 p.m.
Patient Advocacy Groups and Event Sponsors Exhibit

12:00-2:30 p.m.
Formal Program

Formal Program

Keynotes

“Successes and Shortcomings of Telehealth for Rare Diseases from the Clinician Point of View” with Susan Berry, MD, Professor, Department of Pediatrics, University of Minnesota Medical School

“Policy, Patients, and Telehealth’s Post-Pandemic Potential” with Bobby Patrick, Vice President of Strategic Growth and Policy, Medical Alley Association

Panel Discussion

“Telehealth: Implications for Care, Policy, and Research” moderated by Paul Orchard, MD, Professor, Department of Pediatrics, University of Minnesota Medical School