Events

Aug
16
Sun
Step Out for Bleeding Disorders Walk Fundraiser Goes Virtual for 2020!
Aug 16 – Aug 31 all-day

 

 

We’re still taking donations for the 2020 Step Out for Bleeding Disorders fundraising walk! Thanks everyone for your support to date!

Click here to donate to our walk

Aug
20
Thu
Virtual Event: Gene Therapy Research: What You Need to Know
Aug 20 @ 6:00 pm – 7:00 pm

You’re invited to a patient-focused virtual event about the science behind gene therapy research.

For more information and to register click HERE.

Oct
15
Thu
Family Education Zoom Session @ Zoom
Oct 15 @ 6:00 pm – 7:00 pm
Oct
17
Sat
Final Session of Inspiring Shots Golf Clinic with Perry Parker @ Columbia Driving Range & Learning Center
Oct 17 @ 11:00 am – 1:00 pm

If you wish to attend and/or you have questions, please email info@hfmd.org

Nov
5
Thu
Get Connected: Virtual ITP Education and Networking @ Zoom
Nov 5 @ 6:00 pm – 8:00 pm

Please Register HERE

Nov
14
Sat
HFMD 2020 Virtual Symposium @ Zoom
Nov 14 @ 9:00 am – 12:00 pm

Please Register HERE.

Dec
3
Thu
HFMD & BioMarin HemDifferently Virtual Event @ Zoom
Dec 3 @ 6:00 pm – 7:00 pm

For more information and to register, please click HERE.

Jan
14
Thu
HFMD & BDAND HFA Hemophilia Jeopardy Zoom Event @ Zoom
Jan 14 @ 6:00 pm – 7:00 pm

Please Click HERE to Register!

Jan
30
Sat
Virtual Family Event by The Coalition for Hemophilia B – For Hemophilia B Patients Only @ Virtual
Jan 30 @ 2:00 pm – 7:00 pm

The Coalition for Hemophilia B is holding 9 meetings for their Factor 9 families nationwide over January, February, and March. Meetings are FREE for families living with hemophilia B. Each meeting will be tailored to families in certain states/regions of the country.

You must register by the deadline to receive the Zoom link and agenda. Each meeting will last a half day.

Register by the early deadline and we will ship a box of supplies to your home to enhance the meeting experience!

Please Register HERE

Please Note: This virtual event is for families living with Hemophilia B only. 

Mar
1
Mon
2021 Washington Days @ Virtual
Mar 1 @ 12:00 am – Mar 5 @ 11:45 pm

NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. In 2020, Washington Days had more than 450 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and access to skilled nursing facilities (SNFs). The issues and priorities for 2021 Washington Days will be announced later this year.

Please note that Washington Days 2021 will be a virtual experience. Washington Days programming will take place during the dates of March 1-5. More programming details will be announced soon.

 

 

Learn More and Register HERE