Resources

Click HERE to see the National Hemophilia Foundation’s Health Care toolkit to help you decide your personal and family health care insurance coverage.

Hemophilia – is a generally inherited bleeding disorder caused by low levels, or absence of, a blood protein that is essential for clotting; hemophilia A is caused by a lack of the blood clotting protein factor VIII; hemophilia B is caused by a deficiency of factor IX.  The disorder delays coagulation, making bleeding difficult to control.

Below are some helpful resources:

Hemophilia Treatment Centers

Mayo Comprehensive Hemophilia Center

Sanford Children’s South Dakota Center for Blood Disorders

Children’s Hospital and Clinics of Minnesota

Fairview University Hemophilia and Thrombosis Center

More information can be found here.

Education & Information

National Hemophilia Foundation

The Hemophilia Federation of America

World Federation of Hemophilia

Legislative Action Center