Events

Jan
26
Sat
Bleeding Disorder Winter Teen Retreat @ Camp Courage
Jan 26 – Jan 27 all-day

teen-retreat-flier-2019

For more information on this program click here:  Letter with Information

To download the registration form click here: 2019 Teen Weekend Application

Feb
1
Fri
Mayo Family Event @ Hyatt Regency Bloomington
Feb 1 – Feb 3 all-day

This event is for Mayo patient’s and their families only.

Feb
9
Sat
2019 Hearts of Hope Gala @ Metropolitan Ballroom & Clubroom
Feb 9 @ 6:00 pm – 11:00 pm

We are now accepting registrations for the 2019 Hearts of Hope Gala. Click the “Event Website” link above for more information and to register!

Mar
1
Fri
U of M Rare Disease Day @ Graduate Hotel Minneapolis Campus
Mar 1 @ 10:30 am – 2:30 pm

Topic is Clinical Gene Therapy: the Future is Now.

For more information visit their website at: https://www.pharmacy.umn.edu/news-and-events/rare-disease-day-2019.

Mar
12
Tue
Bleeding Disorder Awareness Day @ Minnesota State Capitol Rotunda
Mar 12 @ 1:00 pm – 4:00 pm

Join HFMD in the Minnesota State Capitol Rotunda to help generate awareness of the challenges of living with a bleeding disorder.

For more information and to register for the event visit us at: https://www.greenvelope.com/view/bcf93631678041d1a8ade24c05dbd065/0

Apr
26
Fri
Annual Members Meeting @ Hilton Airport/Mall of America
Apr 26 @ 4:00 pm – Apr 27 @ 3:30 pm

Click the following link to access the registration and childcare forms (note: a separate childcare form must be completed for each child):  https://www.greenvelope.com/event/HFMDannualmtg

May
16
Thu
Hello Talk Sponsored by Takeda @ Mallory's Restaurant
May 16 @ 5:30 pm – 8:00 pm
May
18
Sat
Coalition for Hemophilia B Minneapolis Meeting @ Hilton Airport/Mall of America
May 18 @ 9:00 am – 4:00 pm
Jun
15
Sat
Apple Valley Aquatic Center Sponsored by CVS @ Apple Valley Aquatic Center
Jun 15 all-day

This event is full.

Jul
7
Sun
Hemophilia Summer Camp @ Camp Courage North
Jul 7 – Jul 12 all-day

To download the information letter and registration forms click the following link:

2019 Camp Documents

 

Mail completed forms to: Zach Orner, 6350 Indian Chief Rd, Eden Prairie, MN 55346