Events

Jul
13
Mon
Kids Summer Program
Jul 13 – Jul 17 all-day

For more information and to register your child/children for this event, please click the Event Website link above.

summer-program-invite

Jul
25
Sat
SD Family Education Day @ GreatLIFE Suburban Lanes Family Fun Center
Jul 25 all-day

Map of Event Location

We’re now taking registrations for this event.

See the following link if you’d like to complete your registration online: SD Invitation with Registration Link, or download the attachments with the invitation to submit your registration via US mail, email or fax.

You can also click this link SD Registration Forms to Download to access the downloadable forms directly.

Aug
16
Sun
Step Out for Bleeding Disorders Walk Fundraiser Goes Virtual for 2020!
Aug 16 – Aug 31 all-day

 

 

We’re still taking donations for the 2020 Step Out for Bleeding Disorders fundraising walk! Thanks everyone for your support to date!

Click here to donate to our walk

Aug
20
Thu
Virtual Event: Gene Therapy Research: What You Need to Know
Aug 20 @ 6:00 pm – 7:00 pm

You’re invited to a patient-focused virtual event about the science behind gene therapy research.

For more information and to register click HERE.

Oct
15
Thu
Family Education Zoom Session @ Zoom
Oct 15 @ 6:00 pm – 7:00 pm
Oct
17
Sat
Final Session of Inspiring Shots Golf Clinic with Perry Parker @ Columbia Driving Range & Learning Center
Oct 17 @ 11:00 am – 1:00 pm

If you wish to attend and/or you have questions, please email info@hfmd.org

Nov
5
Thu
Get Connected: Virtual ITP Education and Networking @ Zoom
Nov 5 @ 6:00 pm – 8:00 pm

Please Register HERE

Nov
14
Sat
HFMD 2020 Virtual Symposium @ Zoom
Nov 14 @ 9:00 am – 12:00 pm

Please Register HERE.

Dec
3
Thu
HFMD & BioMarin HemDifferently Virtual Event @ Zoom
Dec 3 @ 6:00 pm – 7:00 pm

For more information and to register, please click HERE.

Jan
14
Thu
HFMD & BDAND HFA Hemophilia Jeopardy Zoom Event @ Zoom
Jan 14 @ 6:00 pm – 7:00 pm

Please Click HERE to Register!